Parenting Kids with Prenatal Alcohol and Drug Exposure

4ef730cf2ebc409e8f7165aabb890d15 Host Dawn Davenport, Executive Director of Creating a Family, the national infertility & adoption education and support nonprofit, interviews a panel of adoptive moms who are raising children who were exposed in pregnancy to alcohol or drugs.

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Help Wanted: Study for Mothers of Children With Special Needs

Ileana%20Lindstrom%20Study%2001-26-2014

The Scoop on Nutrition and the Adopted Child

New Webinar!

November 5th, 2013
7:00 PM Central
Q&A: 8:00 PM

Internationally adopted children often suffer physical, cognitive, and behavioral challenges due to poor nutrition in their early years. Once a child comes home, adoptive parents often struggle to make up for nutritional deficiencies.

Join Dr. Dana Johnson, renowned international adoption physician, as he helps parents understand the impact of poor nutrition and how to help children catch up.

  • Understand what deficiencies your child may have and why.
  • Recognize the impact malnutrition has on a child and what warning signs to look for.
  • Learn strategies and tips to help your child catch up and thrive.

Submit your questions for us here or by tweeting them to @adoptiontweet using ##ALPNutrition

Adopted Children Greeted by Doctors who Specialize in Their Needs

Physicians specializing in adoption medicine are experienced at identifying and helping to care for the unique medical, mental and developmental needs of adoptees.

pprsa1217aBy Carolyne Krupa, amednews staff. Posted Dec. 17, 2012.

When Eleanor Rybicki first came to the office of Elaine Schulte, MD, MPH, in August, she was a frail and tiny baby — so small she didn’t register on U.S. growth charts for her age group.

Joseph and Kimberly Rybicki, who adopted Eleanor from a Chinese orphanage, were nervous, but Dr. Schulte quickly put their fears to rest.

“Eleanor was malnourished and understimulated, both cognitively and physically,” Kimberly Rybicki said. “She could sit up, but just barely. She was not crawling, and it was clear that she had not spent much time on her stomach. Dr. Schulte was very helpful. Because of the experience she has had seeing these children over the years, she didn’t panic.”

Dr. Schulte assured them that Eleanor’s condition was common for children who had spent their earliest months in institutions and advised them that the child would improve with proper care, love and stimulation.

As an adoption medicine specialist and medical director of the International Adoption Program at Cleveland Clinic Children’s Hospital, Dr. Schulte routinely sees children who come from challenging circumstances. She is one of about 65 physicians in 31 states who focus much of their practices on treating adopted children, according to the American Academy of Pediatrics’ Council on Foster Care, Adoption and Kinship Care.

Adoption medicine is not a board-certified specialty. Most pediatricians see at least some adopted patients, but adoption medicine specialists have a specific interest in this patient population. Many have adopted children themselves, and they understand adoptees’ needs and focus on helping families meet those needs.

Most adoption medicine physicians are primary care doctors, or they specialize in infectious diseases or developmental-behavioral pediatrics, said Sarah Springer, MD, a general pediatrician with Kids Plus Pediatrics in Pittsburgh and medical director of International Adoption Health Services of Western Pennsylvania.

“It is definitely a focus of interest that is really interesting and fulfilling,” she said. “You get to know some amazing kids and some amazing families. It’s really fun to see kids blossom who may not otherwise have had the chance.”

Drawn to treating adoptees

Jane Aronson, DO, has treated adopted children for about 25 years. An infectious diseases specialist, she started getting inquiries from adoptive parents, and those questions increased as international adoptions spiked in the 1980s and 1990s. For many years, she had a primary care adoption practice in New York.

Though inspired by the children she treated, Dr. Aronson found that she also wanted to do something for children who weren’t adopted.

“I became aware that there were millions of orphans living in developing countries who weren’t getting the care they needed,” she said.

In 1997, she founded the Worldwide Orphans Foundation with the goal of improving living conditions for orphans around the world and helping them become healthy, independent and productive adults. The foundation has helped orphans in 14 countries and remains active in five.

Being an adoption medicine specialist means focusing not just on the unique medical needs of adopted children, but also on their mental, behavioral and developmental health, said Dr. Aronson, who has two adopted sons from Vietnam and Ethiopia.

“Most pediatricians and family doctors are not aware of the issues of adopted children,” she said.

Dana E. Johnson, MD, PhD, a professor of pediatrics with the divisions of neonatology and global pediatrics at the University of Minnesota Medical School, got into adoption medicine after he and his wife adopted their son from India in 1985. At the time, it was difficult to find anyone specializing in treating adopted children. Many adoption agencies seemed to deny that the children had any special needs, he said.

“When we first posed the idea of an international adoption clinic in 1986, we were told no one needs it, because these kids are doing so well,” Dr. Johnson said.

Orphanages provide a rough start

Children who are institutionalized can have a variety of emotional, developmental or behavioral problems, said Dr. Johnson, who has visited orphanages in Russia, Romania, India, China, Nepal and Kazakhstan. Such children don’t receive needed stimulation early in life. They are seldom touched, and that can lead to problems such as trouble with personal contact or balance. The longer children are in an institution, the worse their problems, he said.

“Early institutionalization is catastrophic,” Dr. Johnson said. “What a child really needs is a family as early as possible.”

For many adopted children, the challenges begin before they are born, Dr. Aronson said. They may have birth defects, or are born underweight or premature, because their biological mothers did not get appropriate prenatal care or used drugs or alcohol while they were pregnant.

Many adopted children also come with emotional challenges because of their experiences. Dr. Schulte said many adopted children have attention, learning and behavioral issues. They often struggle with anxiety issues akin to posttraumatic stress disorder.

Because of these children’s unique needs, physicians should perform comprehensive evaluations of newly adopted children, according to an American Academy of Pediatrics’ clinical report in the January issue of Pediatrics.

“There are so many issues that we as pediatricians may not normally think about,” said Veronnie Faye Jones, MD, PhD, MSPH, the report’s author. She is a pediatrics professor and an associate dean for academic affairs at the University of Louisville School of Medicine. “There may be genetic predispositions that you may not know about. A lot of these kids may have unsettling pasts, and there may be a lot of issues that are lingering for them.”

More than 100,000 children are adopted in the U.S. each year, including about 22,000 international adoptions, the report said.

Increasingly complex cases

Dr. Springer said it’s important to educate physicians about the needs of adopted patients. She routinely sees children with physical, mental or developmental disabilities, such as complicated heart problems and neurodevelopmental disabilities.

“We work hard to help educate all physicians about what the needs of these kids are, and to help them understand that — while they may look as healthy as all the other kids walking into your office — you need to consider the trauma they may have experienced,” Dr. Springer said.

International adoptions have decreased in recent years as countries like China and Russia have increased restrictions. As a result, more special-needs children are being adopted from abroad, Dr. Springer said. “The numbers of kids are way down, but the complexities of their needs are way up,” she said.

Adopting a healthy child from China can take several years, so the Rybickis adopted a child with special needs. They selected from a list of special needs they thought they could handle. They were matched in March with Eleanor, who was born with a cleft lip and palate, and held her for the first time Aug. 6.

“The nanny walked up and just handed her to us. It was completely surreal,” said Kimberly Rybicki, a registered nurse in the cardiac progressive care unit at Cleveland Clinic. “There is nothing that can prepare you for that experience.”

Eleanor’s lip was repaired in China, and she had surgery to fix her palate in mid-November. Dr. Schulte has been a guiding force through it all, Rybicki said. Early on, she ordered several tests to make sure Eleanor didn’t have any other health issues and brought her up to date on vaccinations. She also helped the Rybickis find the best way to solve Eleanor’s sleep problems as she adjusted to her new environment.

“Dr. Schulte was very, very helpful in helping us know what to do and what to expect,” Rybicki said. “Adoption in and of itself is a special need. You want a primary physician who understands the needs of your child.”

Resilient young patients

Like Eleanor, many of Dr. Schulte’s patients are malnourished and understimulated initially. Dr. Schulte became an adoption medicine specialist after adopting two girls — now 15 and 16 — from China in 1997 and 1998. In 2007, she started Cleveland Clinic’s International Adoption Program.

Dr. Schulte said it’s incredible to watch her patients’ resilience as they grow and flourish with their new families.

“One of the greatest pleasures for me to observe as a physician is to see what happens between the first visit and the follow-up visit [four months later],” said Dr. Schulte, also chair of the Dept. of General Pediatrics at Cleveland Clinic Children’s Hospital and professor of medicine at Cleveland Clinic Lerner College of Medicine.

Dr. Johnson said the specialty can be rewarding and challenging. In one instance, a family he worked with was preparing to pick up their child in India when the government raided the orphanage. The adoption was delayed, and the child spent more than six months in a government institution. Her growth stagnated as a result, Dr. Johnson said.

When the family finally brought her home, she was put into therapy. Now a teenager, the girl is thriving. She plays the violin and speaks at fundraisers for international adoption.

“She is a star and just a shining example of how resilient children are and how important families are,” Dr. Johnson said. “It is just enormously gratifying to see something like that.”

Dr. Springer, who adopted two children in the U.S., said as many as 75% of her patients are adopted or in foster care. They provide many inspirational moments.

“You see miraculous changes in kids all the time,” Dr. Springer said. “With the right family and the right support, kids can do more than you would ever imagine.”

Correction to Article: 2011 brought only 9319 children home through international adoption.  The number quoted in this article reflects 2004 statistics.

Emergency Request from Sisters of Charity (SOC)-Bethlehem

Logo 

Society for Orphaned Armenian Relief (SOAR)

1060 First Avenue, Suite 400, King of Prussia, PA 19406 USA

Phone: 610.213.3452   Fax: 610.229.5168

Email: gyacoubian@soar-us.org   Web: www.soar-us.org

 

Emergency Request from Sisters of Charity (SOC)-Bethlehem

The Sisters of Charity (SOC) is a Catholic religious order established by Mother Teresa to tend to “the poorest of the poor.” SOC-Bethlehem is a private orphanage in Yerevan that houses approximately 15 children with severe physical and mental disabilities. Late last week, SOAR received an emergency request from SOC-Bethlehem for medical equipment. Until now, SOAR has never received an unsolicited request from SOC.

Specifically, SOC has requested two (2) Rover Strollers and three (3) Floor Sitters. The Strollers are built for both indoor and outdoor transport, while the Floor Sitters keep the children in upright positions for floor activities.

The total cost, including shipping to Yerevan, is $6,500.00.

If you would like to contribute to our collection for Sisters of Charity, please call 610.213.3452.

SOC-Bethlehem and SOAR thank you in advance for your generosity!

The Society for Orphaned Armenian Relief (SOAR) is a 501(c)(3) nonprofit organization dedicated to providing humanitarian relief to orphaned Armenian children.  Working with a loyal donor base and a trusted network of partners, SOAR distributes clothing, educational supplies, medicine, and other essential resources to orphaned Armenian children throughout the world.

Families are Forever: : Lead poisoning Prevention Information for Parents and Prospective Parents of Internationally Adopted Children

Dear Colleagues,

Here is an article containing important information to safeguard the health of internationally adopted children, during early medical exams in the U.S.

The risk for lead exposure is higher in many countries from which children are adopted than in the United States. Sources of lead exposure vary by country. Concern exists about children adopted from overseas who may have been exposed in their home countries. The full article is linked below.

Title: Families Are Forever: Lead poisoning Prevention Information for Parents and Prospective Parents of Internationally Adopted Children: Important Information to Safeguard the Health of Your Child, During Early
Medical Exams in the U.S.

Published:
2011

PDF: http://www.cdc.gov/nceh/lead/tips/adoptionflyer.pdf

Abstract: Intended for adoptive parents of children from other countries, this fact sheet reviews information on the risk of lead exposure. Information is provided on finding …

Joint Council on International Children’s Services | Partnership Department
Joint Council CFC Donation Information #10366
Please note: Joint Council is listed as “Adoptions International – JCICS

Happy Mother’s Day to our Waiting Mommies

Attachment and Trauma in Early Childhood Presented by: Charles Zeanah, MD

Young children who experience serious adversity are at risk for long-term health and mental health difficulties. Serious adversity may result from absence of expectable environmental responsiveness, as in neglect and deprivation, or from presence of toxic stressors such as abuse or witnessing violence. In this session, we will consider both aspects of adversity, their effects on young children, and use in-depth case presentations to illustrate treatment approaches.

Dr. Charles Zeanah is the Sellars-Polchow Professor of Psychiatry, Professor of Clinical Pediatrics, and Director of Child and Adolescent Psychiatry at Tulane University. He is also the Executive Director of the Institute of Infant and Early Childhood Mental Health.

Dr. Zeanah’s academic interest has been in the area of infant mental health, particularly in understanding infants’ development in the context of the infant-parent relationships. He conducts research on the effects of abuse, neglect, serious deprivation and exposure to violence on young children and on interventions designed to help them recover.

http://www.infantinstitute.org

Board Member, Robin Sizemore, Highlights the Call for Medical Volunteers for Kybele’s Summer Program in Armenia

We would like you to consider joining Kybele Armenia 2012, arriving in Yerevan on June 23rd and leaving July 7th, 2012. Armenia is a very interesting travel destination. The potential and enthusiasm in Armenia is as strong as ever. Simon Millar and myself will be leading the trip. As experienced participants we would really appreciate your consideration in joining us as we continue to build on the excellent relationship and progress that the previous two Kybele trips have established.

The plan is to spend the first week in 3 hospitals Yerevan, the capital city. We will open with the conference to help set the tone for the trip, before spreading out to 3 or 4 of the regions for the second week. It will be important that we take a good mix of Anaesthetists, Obstetricians and Neonatalogists to make as wide an impact as possible. Ashot Amroyan, the local host and champion, is keen that we help establish National Guidelines, and I feel that this could be the basis of an ongoing quality improvement project.

Building the team is the priority right now, so we’d love it if you could join us.

Healing Hands

An International Adoption (IA) Specialist Pediatrician is invaluable in the assessment of a referral.  The evaluation is priceless, as it allows you, the prospective adoptive family, to truly ascertain your capacity to parent the child and provide the best home and future.  Your evaluation will allow you to seek out resources specific to your new child’s needs in advance of their coming home.  Another recommendation would be to consider working with an IA specialist that sees the majority of children from the sending country in their IA practice.  By choosing such a doctor, you’ll benefit from their ability to draw upon experience from having seen many medical reports and knowing the nuances to how records are kept, the standard of care to keep and any other cultural idiosyncrasies specific to their reporting.  Most IA specialist will also work with you while you are in country to help you assess before you commit the child’s adoption.  Hopscotch strongly urges all families to contract with an IA specialist as soon as possible to have your account set up for quick turn around on a referral when the big day comes.

For more information, see “Healing Hands” by Richard Jerome.

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